Step 1: Should I be concerned?
Possible Developmental Concerns:
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Avoidance of snuggling/tends to rely on self-calming(rocking or other repetitive behaviors)
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Eye contact is brief, rarely initiated
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Inconsistent response to name(parents often worry that child is deaf)
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Absence of basic gestures to communicate needs or wants
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Absent or delayed speech. May develop, but not communicative(repeating dialogue from TV show or movie to himself /herself)
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Not very interested in typical toys; more interested in unusual objects; play repetitive in nature(spinning wheels on a toy; lining up blocks); May be especially talented regarding visual-motor tasks such as completing puzzles
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Minor changes in routine can be discomforting leading to aggression or tantrums
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At times seems “in his/her own world” and oblivious to others; Does not seem upset when left with someone unfamiliar; Has not developed strong and differential relationships with family members
Red Flags from the First Signs Organization:
Step 2: Medical Component
Step 3: Referral for Evaluation
Step 4: Insurance
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Contact your insurance company to see if therapies with a diagnosis of developmental delay is a covered benefit(most insurance companies do not cover these services)
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You may want to apply for the Medical Access card to supplement your current insurance. Contact the Lancaster County Assistance Office at 717-299-7421
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If you qualify for Medical Assistance, you will need to choose a plan (Amerihealth Mercy, Gateway, Medplus, Unison etc) Verify that your child’s physician participates with the plan before you choose one(After you choose a plan, there is a special needs department at the insurance company that you can contact directly to assist you)
Step 5: Seeking a Diagnosis
Step 6: Community Outreach
- Consider support groups
- Investigate community resources
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Network with other families
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For more information on specialists, programs and/or services, contact your service coordinator, case manager, physician or members of your child’s team
Services
Consider the following:
Transitioning From Early Intervention to the Intermediate Unit
- Intermediate Unit contacts family when the child reaches age 3
- An Individualized Education Plan(IEP) for your child will be created.
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A parent can make changes or request different services than the ones recommended by the IU. Ask for your options.
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You may want to contact a parent who has been through the process prior to the meeting with the IU
Disclaimer: This Road Map includes information from various sources and was compiled by the Lancaster Autism Committee. It is meant to provide information that parents “wish we had known when our children were first diagnosed”. This information is not comprehensive and should not be construed as medical or legal advice. We extend a special thank you to the parents who contributed to this resource.